I established Pickpoint, LLC in June 2017 after seeing a strong need for an experienced non-profit professional to help accelerate, enhance and expand the mission of patient advocacy non-profits. Having worked with other consulting organizations in past leadership roles of regional, national and international organizations, I always had a vision. I wanted to create a consulting business where I could utilize my diverse non-profit operations and management background while driving my passion for patient advocacy as if I were a long-standing employee.
Since opening my doors to Pickpoint LLC, I have been able to share my passion, skills and talents with eight amazing organizations in various capacities and I'm looking forward to moving the needle for more groups in the future.
Currently, I am partnering with the Gorlin Syndrome Alliance as Associate Director, the Cicatricial Alopecia Research Foundation as Executive Director, and the United Leukodystrophy Foundation as their strategic advisor.
Prior to opening my own business, I was employed as Chief Executive Office at the Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) for 17 years. I was also employed at the American Heart Association as Special Events Director, and began my non-profit career at the National Tay-Sachs & Allied Diseases Association of Delaware Valley as Assistant Executive Director. I also had the privilege to serve a four-year term as an Advisory Council Member at the National Institute of Arthritis, Musculoskeletal and Skin Disease (NIAMS), a branch of the NIH and served as Treasurer of the Coalition of Skin Diseases from 2013 to June 2018.
I have spoken at the International Association of Dermatology Patient Organizations (Global Skin) biennial conferences in Geneva (2017) and Milan (2019) to share and collaborate with patient groups around the globe.
I am a lifelong supporter for individuals and families affected with rare and chronic diseases and have devoted my career to patient advocacy. I love what I do!
We Could Make a Great Team. I'd love to chat about your organizational needs and ways that we could work together.