About Jean

With nearly 30 years of  patient advocacy and non-profit management experience, Jean opened Pickpoint LLC in June 2017, to share her passion, skills and talents with other patient advocacy groups. Since opening her doors, Jean has served in various capacities for eight amazing organizations and is looking forward to moving the needle for more  groups in the future.

Currently, Jean is partnering with the Gorlin Syndrome Alliance as Executive Director, the Cicatricial Alopecia Research Foundation as Executive Director,  and the Southeastern Dermatology Consortium as their annual CME meeting planner.

Previous Pickpoint partnerships include:

  • Cutaneous Lymphoma Foundation as a strategy and development consultant;
  • Foundation for Ichthyosis & Related Skin Types (FIRST) as transition liaison to incoming Executive Director;
  • Vitiligo Support International (VSI) as development consultant, and;
  • International Topical Steroid Awareness Network (ITSAN) as strategic consultant.

Prior to opening her own business, Jean was employed as Chief Executive Office at the Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) for 18 years. Jean was also employed at the American Heart Association as Special Events Director, and began her non-profit career at the National Tay-Sachs & Allied Diseases Association of Delaware Valley as Assistant Executive Director.  Jean completed a four-year term as Advisory Council Member at the National Institute of Arthritis, Musculoskeletal and Skin Disease (NIAMS), a branch of the NIH and served as Treasurer of the Coalition of Skin Diseases from 2013 to June 2018.

Jean has been a speaker at the International Association of Dermatology Patient Organizations (Global Skin) biennial conferences in Geneva (2017) and Milan (2019) to share and collaborate with patient groups around the globe.

Jean is a lifelong supporter for individuals and families affected with rare and chronic diseases and has devoted her career to patient advocacy. Jean’s compassion and positive nature serve her well in the nonprofit sector.